dbGap Study Rubric
rubricA set of metrics to evaluate the FAIRness of dbGap studies
Tags: DCPPC
View AssociationsRubric Assessments (29)
| Assessment | Metrics | |||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Target | Project | A standardized ID or accession number is used to identify the dataset. | Information is provided on the experimental methods used to generate the data. | The dataset is hosted in an established data repository, if a relevant repository exists. | The dataset can be downloaded for free from the repository. | Version information is provided for the dataset. | Contact information is provided for the creator(s) of the dataset. | Information is provided describing how to cite the dataset. | Licensing information is provided on the datasetÂ’s landing page. | The metadata includes a title for the data resource | The metadata includes a description of what the data is about | Whether there is a scheme to uniquely identify the digital resource | Machine-readable metadata that describes a digital resource is available. | What is the nature and use limitations of the access protocol. | Use of a formal, accessible, shared, and broadly applicable language for knowledge representation. | Standardized metadata | Protocol to access restricted content | Update information is available | Attribution information is available | |
| Framingham Cohort | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) |
| Genetic Epidemiology of COPD (COPDGene) | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| Women's Health Initiative | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | no (0.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | no (0.00) | no (0.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) |
| Multi-Ethnic Study of Atherosclerosis (MESA) Cohort | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| Atherosclerosis Risk in Communities (ARIC) Cohort | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI Cleveland Family Study (CFS) Candidate Gene Association Resource (CARe) | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| CARDIA Cohort | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| Jackson Heart Study (JHS) Cohort | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| Cardiovascular Health Study (CHS) Cohort | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: Genes-environments and Admixture in Latino Asthmatics (GALA II) Study | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: Study of African Americans, Asthma, Genes and Environment (SAGE) Study | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: Boston Early-Onset COPD Study in the TOPMed Program | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: Genetic Epidemiology of COPD (COPDGene) in the TOPMed Program | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: The Cleveland Family Study (WGS) | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: Genetics of Cardiometabolic Health in the Amish | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: The Jackson Heart Study | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: Whole Genome Sequencing and Related Phenotypes in the Framingham Heart Study | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: Heart and Vascular Health Study (HVH) | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: The Vanderbilt AF Ablation Registry | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| Heart and Vascular Health Study (HVH) | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: Partners HealthCare Biobank | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: The Vanderbilt Atrial Fibrillation Registry | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: Novel Risk Factors for the Development of Atrial Fibrillation in Women | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: MGH Atrial Fibrillation Study | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
| NHLBI TOPMed: The Genetics and Epidemiology of Asthma in Barbados | Trans-Omics for Precision Medicine (TOPMed) Program |
|
yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | no (0.00) | yes (1.00) | yes (1.00) | yes (1.00) | yes (1.00) |
