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COVID-19 registry FAIR Assessment
View Associations
Rubric Assessments (20)
Assessment
Metrics
Target
Project
The structure of the repository permits efficient discovery of data and metadata by end users.
The repository uses a standardized protocol to permit access by users.
The repository provides contact information for staff to enable users with questions or suggestions to interact with repository experts.
The repository maintains licenses to manage data access and use.
A description of the methods used to acquire the data is provided.
The repository is findable on search engine
The contact information is valid (repository experts answer the email, email is valid)
The repository permits data sharing (or a summary of their data) thanks to scientific articles and/or dashboard
The registry uses of a controlled vocabulary (COVID-19 CRF or data dictionary)
The repository uses a FAIR controlled vocabulary (like existing clinical-epidemiological standards like ICD 9-11, CDASH, SNOMED, LOINC or existing ISARIC/WHO CRF)
The registry uses links to related platforms (data contextualisation (related resources))
The repository provides information about who and how is data entered
ASCO
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
no (0.00)
yes (1.00)
yes (1.00)
no (0.00)
yes (1.00)
yes (1.00)
COVID-19 CVD Registry
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
no (0.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
COVID-HEP Registry
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
no (0.00)
yes (1.00)
yes (1.00)
no (0.00)
yes (1.00)
yes (1.00)
COVID-19 Dermatology registry
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
nobut (0.25)
nobut (0.25)
yes (1.00)
no (0.00)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
Discovery VIRUS COVID-19
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
no (0.00)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
Extracorporeal Life Support Organization Registry
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
no (0.00)
yes (1.00)
yes (1.00)
nobut (0.25)
no (0.00)
yes (1.00)
Pregnancy CoRonavIrus Outcomes RegIsTrY
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
no (0.00)
yes (1.00)
no (0.00)
yes (1.00)
yes (1.00)
no (0.00)
yes (1.00)
yes (1.00)
COVID-19 Global Rheumatology Alliance
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
nobut (0.25)
no (0.00)
yes (1.00)
yesbut (0.75)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
SECURE-Cirrhosis Registry
World Health Organisation COVID registries assessment
no (0.00)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
yesbut (0.75)
yes (1.00)
yes (1.00)
no (0.00)
nobut (0.25)
yes (1.00)
The American Society for Hematology Research Collaborative COVID-19 Registry for Hematologic Malignancy
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
yesbut (0.75)
no (0.00)
yes (1.00)
yesbut (0.75)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
Coronavirus and MS Reporting Database
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
nobut (0.25)
no (0.00)
yes (1.00)
no (0.00)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
HIV and COVID-19 Registry in Europe
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
no (0.00)
yes (1.00)
yesbut (0.75)
no (0.00)
no (0.00)
yes (1.00)
Coronavirus and Celiac Disease Reporting Database
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
no (0.00)
nobut (0.25)
yes (1.00)
yesbut (0.75)
yes (1.00)
yes (1.00)
no (0.00)
nobut (0.25)
yes (1.00)
Coronavirus and Psoriasis Reporting Registry
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
no (0.00)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
SECURE-Sickle Cell Disease Registry
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
nobut (0.25)
no (0.00)
yes (1.00)
no (0.00)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
Coronavirus and Atopic Dermatitis (AD) / Alopecia Reporting Database
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
yesbut (0.75)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
MS Global Data-Sharing Initiative
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
no (0.00)
yes (1.00)
no (0.00)
yesbut (0.75)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
European Renal Association COVID-19 Database
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
no (0.00)
yes (1.00)
nobut (0.25)
no (0.00)
yes (1.00)
yes (1.00)
no (0.00)
no (0.00)
yes (1.00)
China National GeneBank DataBase
World Health Organisation COVID registries assessment
yes (1.00)
yes (1.00)
yes (1.00)
yes (1.00)
yesbut (0.75)
yes (1.00)
nobut (0.25)
yes (1.00)
yes (1.00)
no (0.00)
nobut (0.25)
yesbut (0.75)
The European Genome-phenome Archive
World Health Organisation COVID registries assessment
