The structure of the repository permits efficient discovery of data and metadata by end users.
The repository uses a standardized protocol to permit access by users.
The repository provides contact information for staff to enable users with questions or suggestions to interact with repository experts.
The repository maintains licenses to manage data access and use.
A description of the methods used to acquire the data is provided.
The repository is findable on search engine
The contact information is valid (repository experts answer the email, email is valid)
The repository permits data sharing (or a summary of their data) thanks to scientific articles and/or dashboard
The registry uses of a controlled vocabulary (COVID-19 CRF or data dictionary)
The repository uses a FAIR controlled vocabulary (like existing clinical-epidemiological standards like ICD 9-11, CDASH, SNOMED, LOINC or existing ISARIC/WHO CRF)
The registry uses links to related platforms (data contextualisation (related resources))
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COVID-19 CVD Registry
COVID-19 Dermatology registry
Discovery VIRUS COVID-19
Extracorporeal Life Support Organization Registry
Pregnancy CoRonavIrus Outcomes RegIsTrY
COVID-19 Global Rheumatology Alliance
The American Society for Hematology Research Collaborative COVID-19 Registry for Hematologic Malignancy
Coronavirus and MS Reporting Database
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