An initial rubric for asking questions about repositories.
The structure of the repository permits efficient discovery of data and metadata by end users.
The repository uses a standardized protocol to permit access by users.
The repository provides contact information for staff to enable users with questions or suggestions to interact with repository experts.
Tools that can be used to analyze each dataset are listed on the corresponding dataset pages.
The repository maintains licenses to manage data access and use.
The repository hosts data and metadata according to a set of defined criteria to ensure that the resources provided are consistent with the intent of the repository.
The repository provides documentation for each resource to permit its complete and accurate citation.
A description of the methods used to acquire the data is provided.
Version information is provided for each resource, where available.
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The American Society for Hematology Research Collaborative COVID-19 Registry for Hematologic Malignancy
Coronavirus and MS Reporting Database
HIV and COVID-19 Registry in Europe
Coronavirus and Celiac Disease Reporting Database
Coronavirus and Psoriasis Reporting Registry
SECURE-Sickle Cell Disease Registry
Coronavirus and Atopic Dermatitis (AD) / Alopecia Reporting Database
MS Global Data-Sharing Initiative
European Renal Association COVID-19 Database
China National GeneBank DataBase
The European Genome-phenome Archive
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